Indiana SILC Compliance Report by Qualified Observer
Posted by: Kathleen Kleinmann
Date Mailed: Friday, May 17th 2002 01:50 PM
Date Mailed: Friday, May 17th 2002 01:50 PM
Report of Findings Regarding Compliance of the Indiana Council on Independent Living Author: Kathleen P. Kleinmann, MSW, MPH May 15, 2002 Executive Summary: The Indiana Council on Independent Living is conducting business in a manner that demonstrates clear violation of Title VII of the Rehabilitation Act and contempt for the purpose of the Act. As such, the Rehabilitation Services Administration (RSA) must now sanction the State of Indiana for its poor performance and require that the Governor of the State of Indiana terminate all current appointments to the Council in order to halt the expenditure of Federal funds on activities that are illegal. Once this action is taken, RSA and the Governor's office of the State of Indiana can begin the necessary consultation and planning needed to establish a new Statewide Independent Living Council that operates within the legal statue and related regulations. I have drawn the careful conclusion that Indiana is violating the Rehabilitation Act. This definitive opinion was made due to my observation that the manner of routine operation is without dutiful effort by the State of Indiana or the Indiana Council to comply with the law. During my observation and collection of materials, I observed no attempt by the Council to conceal illegal activity. Framework for Evaluation: Title VII of the Rehabilitation Act sets itself apart from other laws and others portions of Rehabilitation Act itself by the declaration within the opening sentence describing its purpose: "The purpose of this chapter is to promote a philosophy of independent living, including a philosophy of consumer control, peer support, self-help, self-determination, equal access, and individual, and system advocacy, in order to maximize the leadership, empowerment, independence and productivity of individuals with disabilities, and the integration and full inclusion of individuals with disabilities into the mainstream of American society." All activities and expenditures of funds under all parts of Title VII must support this purpose, without exception. It is a rigid test of the activities and expenditures of the Indiana SILC, Indiana State Government, and Indiana organizations participating in the independent living effort. The business of the Council is to establish a comprehensive State Plan in coordination with the State and members of the public who are Stakeholders. The State Plan is to be revised every three years and to be updated annually. Public input in to the process is described throughout Title VII as critically important. The State Plan includes the development of a network of independent living centers and the provision of independent living services, in general. Beyond the Four Core Services, the regulations describe independent living services to include housing, transportation, attendant care, assistive technology, and "Any other services that may be necessary to improve the ability of an individual with a significant disability to function, continue functioning, or move toward functioning independently in the family or community or to continue in employment and that are not inconsistent with any other provisions of the Act." [§364.4 What definitions apply? Independent Living Services 1-21] The State has many departments within its administration that are responsible for providing one or more of the described services. Therefore, the State Plan has broad and sweeping impact on the development and administration of many departments . In full development, the State Plan becomes a tool instrumental to systemic reform in keeping with the purpose of the law for State Government programs directly provided and provided through contract. Sec. 705 (a) declares that the only way for a State to be eligible to receive financial assistance under the chapter is to establish a Council that "shall not be established as an entity within a State agency." It is generally understood that the State Plan can never address its mission if subjugated to a single agency. The requirement that regular Council members must be appointed by the Governor speaks to the desire for autonomy of the Council and the broad-sweeping oversight of its mission. Findings I. Philosophical Foundations of the Indiana Council: A. Qualifications of the Council membership: 1. None of the members of the Indiana are qualified to sit on the Council. Some demonstrate that they do not have a working knowledge of the Rehabilitation Act, the regulations, or the rulings of RSA on related topics. They do not have a working knowledge of their own State Plan. Other individuals may know the requirements of the law and plan, but violate that law knowingly. The manner in which the Council votes to not comply with the statue, conducts misguided meetings, and the Council's acceptance of domination by State officials conclusively demonstrate that the law and State Plan are not used as the requirements of their behavior. Therefore, they are not focused upon the dutiful adherence to the law and their constituency. 2. The more recently appointed members of the Council reported to the other Council members that they had no understanding of the IL Philosophy or application of the IL Philosophy. They were hopeful that training would provide them with an or ientation. Consequently, these members appeared to be confused during most discussions and disturbed by displays of intense emotion over the application of philosophy in decision-making and administration. Independent Living Philosophy is gained through reflection on life experiences as a disenfranched disabled minority group or through a personal insight on the impact of our culture towards that minority. Unfortunately, the Council business cannot wait for them to embrace the knowledge that they need. Council members need to be knowledgeable on IL Philosophy in advance of appointment to the Council. It is irresponsible to appoint members without this basic qualification due to the fact that the Council members are the keepers of the IL Philosophy and set the master plan for related systems change for Indiana under Title VII and their own State Plan. 3. The first requirement of the law regarding composition requires at least one director of an IL Center chosen by the directors of centers within the State. Emma Sullivan was presented to the Council as that duly elected representative. The law makes no requirement that this seat on the Council is appointed by the Governor. The Governor has no power to appoint this position as it is intended by law to represent a specific group of Stakeholders. Ms. Sullivan was not recognized as a voting member. The Council asserted an illegal requirement that Ms Sullivan be appointed to the Council by the Governor. The motion to seat Ms. Sullivan as a member was voted down by the Council in direct violation of the law at the April meeting. 4. There is no process to recruit, identify, and select Council members that are qualified. Therefore, appointments are based upon the preferences of the State and not in keeping with the requirements of the law. 5. Many of the Council members are not qualified because they cannot devote the time needed to perform as responsible members. They appear to hold unrealistic expectation of the amount of time membership will require. Several members indicated that their regular jobs did not permit them to give more that the two hours per month for the Council meeting Committee meetings are either not scheduled or poorly attended due to the lack of commitment of members. Consequently, no progress is the report given for most committee reports. Efforts to extend meeting times to permit more discussion are voted down. Efforts to modify the agenda are unsuccessful. Stakeholders are frustrated by not being permitted to make comments until the meeting is out of regular session. 6. Since the process of selection of Council members is unknown to the Council members themselves, the members do not believe that they are empowered to assist the "powers that be" in the appointment of qualified members to the council. This illustrates that self-determination and system advocacy is not understood or practiced by the Council. A uniform method was talked about vaguely at each Council meeting without serious commitment to even a draft protocol for adoption. Due to the absence of a real written process, individuals with a self-interest can determine appointments and ultimately control the actions of the Council. 7. There are no identified non-voting members who would normally serve to represent the various departments of state that serve state citizens, including citizens with disabilities. The apparent absence of participation of these important non-voting members cuts off the membership from critical information on the state's operation and eliminates any opportunity for meaningful discussion or a partnership on system change activities. 8. A significant number of council members represent organizations that receive Title VII funds and other independent living program funds. They are conducting themselves in a manner to increase their funds received under Title VII. Conflicts of interest related to the flow of Title VII money to the organizations that individuals represent are not clearly identified or acknowledged during critical discussions. Protocols do not exist to assist members in avoiding participation in Council activities for which they have a potential to gain through enhanced funding by their organizations. 9. Council members are uneducated in the Parliamentary procedure that they are using to conduct their own meetings. A parliamentarian has been passively available at the meetings for questions. This is insufficient to the needs of the Counci l. Council members are not qualified to conduct Council business without a working knowledge of the procedure that they are using. This is an area of member qualifications that can be met by several hours of training after appointment. However, there are no trainings planned and no instructional print materials have been made available. During the meeting of April 8, two members made many motions that were acted upon by vote. They were working from a prepared script that was shared with me later. At the next meeting, without a prepared script these same members demonstrated a lack of knowledge on Parliamentary procedure. B. Application of the principle of equal access: 1. Requests for reasonable accommodation for participants or Stakeholders with communication disabilities are openly disrespected and rarely accommodated by the Council. 2. Requests for documents distributed by the Council at regular meetings in alternate formats are generally disregarded entirely when those requests are made by Stakeholders. 3. At the May meeting, the Chairperson made reference to the Rules of Conduct that had been written on the chalkboard and asked all in the room to abide by those rules. A member of the Stakeholders who was blind requested that the words on the chalkboard be read. The Chairperson denied the request, and the Council members did not object. 4. Meeting locations are announced late, changed frequently, and held in out of the way places in an apparent deliberated effort to discourage attendance by stakeholders. Many people with disabilities do not drive yet the use of public transit for access to meetings is not possible or even considered by the Council. Even those whose participation is necessary find access to the meetings difficult. 5. The Council on a routine basis does not provide sign interpreters. One State employee who is deaf serves as a technician for equipment used by the Council when assigned to do so by the State. When he attends the Council meetings, he brings his own employment related interpreters and the Council budget absorbs the cost of his interpreters during that period. Otherwise, an interpreter service is not reserved for the meeting for the routine purposes of the frequent Stakeholders who need interpreters. 6. At the March meeting, a deaf participant who requested extra time beyond three minutes to deliver a brief statement through her own personal interpreter was denied accommodation of additional time required to utilize the interpreter by the Chairperson until the Stakeholders stopped the meeting entirely. 7. Although individual members repeatedly protest the denial of the principles of equal access, the Council in general does not grasp that they are intended to be role models under Title VII of the application of equal access for Indiana and all of its activities. 8. The Stakeholders are virtually shut out of the Council meeting process. The Council barely tolerates Stakeholders in the room. Requests for alternate format of Council materials by the Stakeholders are ignored or openly denied at every Co uncil meeting. At the meeting of April 8, the Council moved the public comment portion of the meeting to an "off the record" time slot when the Council itself is not convened and when Council members are not requested to attend. The frustration level of these Stakeholders is extremely high. Many of the Stakeholders faithfully attend each meeting despite the fact that their comments, requests, and questions are either ignored or ruled out of order. Given their inability to be part of the process and even dialogue with the Council, a few of the Stakeholders have resorted to desperate emotional speeches and even heckling. However, these Stakeholders fair no better than those who are reserved and respectful in their attempts to address the Council. Two of the Council members attempt to intercede on behalf of the Stakeholders but the Chairperson appears determined to maintain a closed process. The Council as a whole does not appear to understand their obligations to be responsive and to find a method to include the Stakeholders. C. Application of systems advocacy: 1. The general issues of people with disabilities, such as housing, transportation, attendant care, public access, were not on the agenda nor mentioned. The Council does not appear to be engaged in a plan of offering guidance to the State Government at various levels in program reform related to independent living philosophy. The Council members do not appear to be sufficiently knowledgeable about the IL Philosophy and the intent of the law to understand that this is the process that they are charged with. 2. The Council focused significant amount of discussion on the establishment of a statewide network of centers as called for in the law. In particular, the Council is concerned with the interests of certain organizations that the State has funded with Part B funds to provide some independent living services. The Council is making a concerted effort to assist these organizations to obtain Part C funds. One or more members of the Council have direct ties to these organizations. 3. The majority of discussion by the Council and the Stakeholders dwells on the topics of Title VII money, who gets it, the difficulty with state contracts, and state reporting of Council funds. Questions to the State staff by the Council are repeated over and over but answers are not available or given inaccurately. The discussion and paper trail demonstrates that there is a lack of consistency, timeliness, impartiality, and fairness by the State related to the financial issues. The problems created appear to be deliberate since the problems are not urgently addressed and left to fester to the detriment of the Council, the majority of centers, and the Stakeholders. 4. Failure by the State to address the money problems feeds the frenzy of animosity and competition among the Council members and stakeholders who seek access to Title VII and State Plan funding. Furthermore, this preoccupation with money has effectively prevented the Council from taking up the real issues of Indiana citizens with disabilities as required by law. 5. Those independent living centers engaged in system advocacy on the state level report that access to their Title VII funding is restricted and conditions are punitive. Those IL Centers have provided evidence of a paper trail and report a history of retribution by the state for conducting the advocacy that is their very mission under Title VII. II. Practice of the Council A. Relationships among significant players 1. There was no evidence of "cooperation, coordination, and working relationships among various entities" as called for in Title VII. Alliances appear to be connected to the flow of Title VII money. One alliances is based upon appeasing the state to acquire money. The second alliance is based upon demanding an entitlement under adherence to prior established rules under the State Plan for obtaining money. However, discussion and the paper trail clearly show that the rules are not followed and no justification is offered. Consequently, those IL Centers engaged in systems advocacy are in a constant state of alarm, frustration, and threat. Individual members with ties to IL Centers that are engaged in seeking additional State funding vote to take actions that are violations of the law and exhibit conflict of interest behavior. 2. At the April 8 meeting, motions were made to follow the State Plan and the Act on several critical issues. Most of the motions were voted down. 3. Many of the Council members urge that IL Centers should demonstrate more of an interest in "getting along" and should refrain from language or actions that support systems advocacy. The State apparently uses money as a reward for non-confrontation about problems and does not judicially implement the rules of play that have been set down in the State Plan and other documents. Through this type of administration, the State effectively thwarts the network of centers and the Council from having cooperative relationships to implement the mission of the Council and the State Plan. 4. With a total absence of non-voting members representing programs and departments charged with serving Indiana citizens with disabilities, the Council is unable to readily access information on the needs of those citizens entitled to service s and the IL Philosophical reform needed to administer those programs. 5. The Council is operating with a Chairperson appointed directly by the Governor very suddenly and without notice to the Council. I believe Title VII specifically states that the Governor of Indiana does not have the right appoint the Chairperson. The Governor has the power of veto in the State legislation and that dictates his inability to appoint a Chairperson. The Council complied with the order of the Governor without challenge or review of the law by demoting the elected Chairperson to regular member status. This was an illegal act. 6. The Governor appointed Chairperson appears to be very interested in the concerns of the State despite his employment as a director of a independent living center. He repeatedly claimed during meetings that he had no responsibility to respond or interact with the public. He does not tolerate discussion that is critical of the State. He has made mild statements during meetings that he is dissatisfied with the financial information provided by the State but has not taken decisive action to remedy the problem despite urging from Council members. 7. The Chairperson sets the agenda in a manner that specifically excludes opportunities for discussion, insists on brief status reports, accepts committee reports of no progress without urging greater progress and timeliness, and only includes topics on the agenda that are administrative in nature. It is inconceivable that the activities of a Council operating in this manner will take actions that will benefit disabled citizens of Indiana. B. Ability of Council to address the Independent Living State Plan 1. There appears to be considerable departure from procedure in the creation and adoption of a State Plan. RSA needs to study the chronology, committee work, public input into the process, and make a determination as to what constitutes the current State Plan. There are credible allegations that the Plan document was manipulated and adopted unlawfully. 2. RSA funded the Ruben Center as a new independent living center in 1998. The State Plan called for the State to contribute funds on a top priority to a new center so that the total budget for a center is $250,000. That amount is generally acknowledged as the threshold at which a center can begin to operate within the requirements of Title VII. The State has thus far failed to provide that funding and has chosen to use applicable funds to contract with different agencies to provide independent living services. The Council has cooperated in this violation of the State Plan. 3. The Council voted to use the new center funding for the upcoming fiscal year to award three tiny grants to three unnamed organizations in specific counties. This was not a priority under the State Plan. There were clear intentions that th e successful organizations were already selected by the State and in some cases had representatives on the Council. Advance meetings have been held with the Council and these predetermined organizations. The small grants of $21,000 cannot possibly enable an organization to operate as a center nor to comply with the standards and assurances under Title VII. However, the Federal award may entitle the organizations to claim other money from the State. If this is the case, the Council is planning to award money in a biased manner as the Ruben Center was not given this same opportunity 4. The members have no knowledge or sense of continuity with their Council's past or a vision of their own destiny. They seem to struggle to operate in a type of information vacuum. Information on prior practice of the council is not shared and questions by members are left hanging. At each meeting I heard the same questions by members. The Chairperson or the State representative promised to find out and report back only to get the same response at the next meeting. Motions were passed and commitments were made without follow through by any member to achieve progress on the issues. 5. Use of Parliamentary procedure is not uncommon but at the Council it is used is a pretext to violating the law unnecessarily. The Parliamentary procedure does not require respectful dialogue and sharing with Stakeholders. The law does require that respect. The procedure does not require reasonable accommodation, but the law does. 6. Recently, the Chairperson sent out correspondence on the recent motions that were passed by the Council to inform them that the motions were not binding in order to set the stage for inaction. 7. The Council is engaged in a process of revision of the Bylaws. There is lack of consensus that the working copy is a complete version or the most recently adopted one. The draft that was presented to the Council did not provide the standa rd format that would illustrate portions of text removed or added to the original document. At the April and May meetings, the committee members complained that the committee chairperson was not conducting committee meetings nor allowing input in to the proposed revisions. Rather, the Bylaw Committee members were asked to submit comments to the draft just as any other member. Members complained that the agenda did not plan or allow for discussion or debate of the draft. As typical of many topics introduced, there did not appear to be any process for dialogue or creating consensus. A minority of Council members complained about the unusual and unfair process. The majority of members appeared resigned to accept the usual status of not exercising power over their own operations. 8. I directly observed representatives of the State repeatedly provide financial data that did not meet the needs of the Council nor satisfy their specific requests. The Council has absolutely no information about the current budget of the Council although the Council is presented with lists of charges against Council funds. The Council has no oversight or approval rights on the use of any funds attributed to the Council. Requests from the Council to expend funds were entirely subject to State approval and State procedures. All aspects of the budget and funding of the Council were clearly in the hands of the State without accountability to the Council. This is illegal. 9. The Council has no control of its own staff. The council cannot hire, direct, or evaluate the performance of any staff. Two employees of the State attended the Council meetings and were assigned to serve as staff to the Council but all as signed duties are under review of the State. The staff appeared to perform only clerical functions for the Council, such as assistance with setting up meetings and preparing minutes. Tasks requested of the staff were frequently not performed. The staff was not able to make any decisions regarding the State's response on any question posed to them during the meetings. The staff stated that they would have to talk to a higher-ranking VR staff person and report back. They appeared unable to answer questions on the financial reports, contract related inquiries, or obtain in-depth program operation information from VR or any other department of State. The staff did not take action on behalf of the Council when motions were passed unless those actions were clerical in nature. Some of the information that they reported to Council was later found to be incorrect. The Council including the Chairperson exhibited frustration over the inability to obtain needed information and follow-up from the state staff. 10. State staff received correspondence on behalf of the Council since the Council does not have an independent office. The State representative admitted that she did not forward such correspondence to the Council as intended. She indicated that she regarded such information as sent to the State and chose only to forward to the Council those items she chose to forward. This is further evidence that the Council is not in control of its own affairs and is operating within a state agency. 11. Given that the State assigned staff did not act on behalf of the Council, progress on actions passed by the Council frequently did not occur. When inaction was discovered, the Chairperson appeared at a loss as to how he was supposed to get it done and sometimes voiced the expectation that the person who made the motion should have performed the action. Most of the Council members reportedly are employed full time. It was clear that these members were unable to contribute a significant nu mber of hours of labor outside the monthly two-hour meetings. Efforts to extend the number of hours of the meeting in order to accomplish more were reportedly difficult for many of the members and agreed to reluctantly. 12. At the May meeting, the State Director from the Chapter Two funded services was a speaker. The program was described in perfunctory and brief terms. The Council did not present any important issues to the director on behalf of the citizens who may have problems with the services. The Stakeholders who had concerns were not able to pose questions or comments to the speaker until the public comment portion at the conclusion of the meeting. The Director agreed to stay until the end of the meeting to provide this opportunity. At the assigned time, the Stakeholder asked about a formal complaint that had been filed related to services several months ago without response. The Director stated that there were no complaints being processed and that she had no knowledge that one had been filed. The Council did not express any interest in the significant problem in their domain that had just been revealed. As in the past observations, the Council did not respond to the Stakeholders on their concerns. 13. Problems related to the functioning of the Council have been reported and known to RSA for several years. RSA has acknowledged with written findings in 1999 that serious problems exist. Recently, verbal guidance and some correspondence we re provided by RSA. However, there has been no definitive written policy directives or sanctions against the State or Council. Consequently, these practices have continued and the affect of these practices has increased the friction between those who want the problem remedied and those who benefit from it. III. Conclusions A. RSA must take action to stop the State of Indiana from drawing down Title VII funds without adherence to the requirements of the law. B. RSA must require that funds denied to Ruben Center since 1998 be awarded in full. C. RSA must take action to advise the Governor of Indiana that the current Council operation is violating the spirit and the intent of the law. D. RSA must take action to assure that the current Council is removed and that a new qualified Council is formed. E. RSA must take action to assure that the new Council adopts public policy and operating procedures that comply with the law. Background Notes: I have been retained by RSA to serve as a qualified observer, evaluator, and reporter related to the activities of the Indiana Council as they pertain to Title VII of the Rehabilitation Act and the State Plan prepared under that Act. I served as the non-government portion of the RSA team to set the groundwork for a full Federal review and evaluation of the Indiana Independent Living Program including the Indiana IL Council. I am very active nationally in the Independent Living Movement; and consequently, individuals from ICOIL and Indiana who are also active in national events in the IL Movement are known to me. I was present on February 20 and 21 at the official forum for the purpose of gathering information provided by the State of Indiana, the Indiana Council, and those entities contracted under Title VII and other miscellaneous State funding to provide independent living services. The focus of the two-day meeting was to allow the involved parties to describe the problems that the State and other players have experienced in complying with the Rehabilitation Act. I have observed the State and the Council's manner of conducting the business of the Council at regular Council meetings on March 13, April 8, and May 10. I also observed the Council's interaction with Stakeholders who are intended to benefit b y the Council's activities and are classified as "the public" under the agenda. I have received written and verbal reports, transcripts, and other evidence of the activities of the Council. I responded to independent contacts made to me by Council members and Stakeholders. The Council made videotapes of each meeting that I attended. These tapes will testify to many of my findings.

